Preparing ourselves for funeral No.2

As tough as it was yesterday to pay respects to my dead friend, today will be far worse. Today we go to remember the feisty five year old. I expect to see parents and children at this one. You could have heard a pin drop yesterday during the service, excepting for a few sighs, sniffles, and an occasional soft sob. Today, who boy, I think we might hear wailing, moaning, and all sorts of histrionics. Not going to lie this weekend has had a difficult and exacting emotional toll. Although rather than be alone, but fir friends, this time I will have my whole immediate family with me. I expect them to only remain a short while before they make a quiet exit. I will stay for the visitation, service, and for a brief stint at any social afterwards if it is on site. This one will be hard to bear. It hits far to close to home for comfort.

So that has been my August Civic Holiday long weekend 2023 experience. I realize how selfish that sounds. One need only to imagine briefly the grief the affected family feels, and you will know how good you’ve actually got it. For us, a sad brief brake from summer vacation. For those suffering, a life time of changes and lost memories. The consequences of our actions are felt long after we leave, by those who had no way to change them.

By all accounts today is August 5th, 2023. A sunny, blue skied Saturday. The first Saturday of the month. And a holiday weekend at that. I think I’ve shared this before, here, that the week immediately after the accident is a total blur to me. I cannot for the life of me distinguish the actions of any one particular day, except Tuesday morning. I recall feeling very distracted that I could not work. And yet I still had enough rolling about upstairs to locate relatives to ask permission to begin the fundraiser. Wait for approvals, and then build, manage, update, thank, and execute by myself. It was one of the few things that kept me from wallowing in sadness at the loss of my friend, and our daughters friend/classmate. Between expanding the posts reach on various socials, answering related emails, fb chats, messages, phone calls, texts, and journalists inquiries (only 3, luckily). Plus I think I wrote out over 250 thank yous to all who donated. I realize that should I ever decide to do another one, I need to organize a full team, and delegate tasks to others. I will say this, the GoFundMe people were a pleasure to work with. My interactions with them were brief, concise, and courteous. It was a simple platform to use, and I didn’t find their service/transaction fees to be outrageous. I give them 5/5 stars. With more than $27,000.00 dollars Canadian raised, they took less than $900.00 in fees. Which I felt was reasonable. You don’t get service rates that good from a bank. But what do I know. I’m sitting on my floor dreading going to this second funeral in two days. So maybe my judgement is clouded. Hard to say.

Less than 2 hours away from the start of the next service. Showered, shaved, and clothes set out for all of us. Remind me not to let my kids swim the day before because the hair we laboured over for hours to get detangled is a mass of knots once more. Pixie cuts all around I say! Or a far shorter summer Bob needs to be instituted if my kids won’t handle their own hair, nor let us do it daily. Grr! Buzz cuts would make things just that much easier for summer. I’m rambling now. We need to eat before heading off. Don’t need hangry kids running about getting emotional. Ciao Bella. Take care of yourselves out there.

Guts in a knot.

Not feeling physically well on the lead up to the first of two funerals this weekend. Guts are all tied up in knots, and I feel pressure in my chest, and pain 8n my intestines. The glory of having Crohn’s Disease I suppose. Here’s hoping I can keep myself in order throughout the visitation & the service itself.

Then I turn my eyes toward tomorrow ordeal. Atleast in tomorrow’s case I’ll have my entire immediate family with me. I hope there is a park near by. It’s ok though, we will deal with whatever comes up as it happens. I know my kids will need to take a few breaks, and maybe even call it off early. It’ll be a hard time for all of us.

The stress and worry, as well as sadness I feel is taking a physical toll on my body right now. I do not reccomend. Zero stars.

Getting into the headspace I need to function…

At no less than two funerals this weekend. I need to travel a fair bit this afternoon on top of it all too. But as ugly as it is, I will most likely fare better at my friend’s funeral, as she was 42, than say –  her 5 year old daughters. I am not in the appropriate head space for either of these things just yet. I need to wrap my head around revisiting all the grief & pain. Not only of my own, but just how much of it I’ll be witness to from other people. I just know I’ll come away from two days of this with a sore lump of a throat. Although that usually stems from not crying, or trying not to cry which hurts my throat. So maybe I’ll let go and will walk away physical pain free.

Emotionally, yeah that will be a different story entirely. I do have the knowledge that I helped just a bit after the fact, so perhaps I will have the wherewithal to focus on that rather than the fact my friend is dead and gone. It’s a long shot, but I’ll give it a whirl.

So that is what is swirling around in my head right now. Trying to psyche myself up for an emotionally charged couple days. We are bringing the kids to their friend’s funeral. I understand they have an activity center, and there is to be no small coffin, nor open casket. Just an urn and photo collages, and flowers. As the wee one was cremated prior (or will have been so) prior to the event. I can not speak to my friend. I hope not. Open casket that is. I’d prefer to remember her as I knew her.

Happy Thursday to all whom celebrate.

Bad cell service…

For such a great country as we have here in Canada, our cell service sorta sucks if you spend any time right outside the large city centers. Or maybe that’s just me, and my phone carrier. Important calls dropped. Speech cut up into unintelligible chunks. Echoes and buzzing. Gah! Just awful. We need to do something about it. Sharpish.

Taking a mo…

Had friends by for a visit which was a welcome respite from last weeks emotionally charged mad dash to raise funds for a friend’s son. Swimming, chatting, bbq lunch, and even ice creams for everyone. Great to see all the kids laughing and having fun. The sun was out, and it wasn’t boiling hot, so a win for everyone. I was really glad for the mid day interruption. Felt good to focus on something a little different for an afternoon.

In alternate news I haven’t read much of book #15 for ten days or more. I don’t actually remember much of last week. It was a bit of a blur. Heightened emotions washed out what little I remember of any individual day. Funny how that works.

Pretty sure today is Tuesday, not only that but August first to boot. Halfway into the summer break. How wild is that. Chat again tomorrow.

Waiting on the dust to settle.

I’d love to boast about my experiences, but the truth is there are factors out of my control that need to be settled before I’ll feel comfortable reporting on my campaign. I will say it has had a net positive effect.

Hopefully by next week all the details will be ironed flat and I can say more, if I still feel like talking about it. Just know that I am proud of all of you for making it such a resounding success for Erik’s future wellbeing. I cannot thank you all enough for that.

– M

Aging with Crohn’s Disease…

Over the last month or so the new normal is feeling fine, followed by an emergency broadcast to use the bathroom which has roughly 30-60 seconds to comply before calamity. No other sense of impending doom is given. No thirty minutes out tummy rumbles. No bloat. Just all’s fine, then Go!, go, go, go, ahhhhhh shucks.

So that’s a fairly perfect snap shot of my life over the last thirty days. Living with intestinal issues has been challenging to say the least. I’m nothing if not adaptable to the realities of my new normal, as it alters and fluctuates every so often, year in and year out. I’m far better off now than in my teen years, or even my early twenties. So don’t shed any tears for me. I am accustomed to taking very seriously the realities of my particular brand of illness. It cares not one whit for how things used to be, or any markers or indicators I used to use to gauge my internal gut health. Not knowing your bodies signals right away is weird. I have to live through it enough to be able to piece the new way together. Do I get cause and effect, coincidence, correlation jumbled? Yeah – yes I do. But if this new way stay stable long enough you can narrow the signals down to what is random noise, and what are the new big sign posts I should pay very close attention too.

Acid reflux and heartburn aren’t new, but the increased frequency with which I deal with those is new to me. Drinking pint glass after pint glass of water has helped out. Eating less dairy per day is usually a smart play. Finding the right balance of veggies and fruit that doesn’t make me feel as though I have swallowed broken glass. Needs to be enough to keep me healthy, but not enough to trigger my ulcerated bowel.

Anyone with intestinal issues has probably internalized a certain (***TMI WARNING***) personalized colour chart, a sense for the sickly sweet smells our bodies produce, and a Richter scale for intestinal rumbling that we use to chart out and/all travel plans, or how far from a restroom we’re willing to be and for how long. In my youth I had to plan out my routes to events or places by what bathrooms were on the way, and whether or not I had to buy stuff to access those bathrooms, and if the owners / operators were ok with a running in and blowing ass all over the insides of their toilet stalls. I never left a place looking any worse than I found it, but I can’t say the same thing for anyone else.

So how is your Lazy Sunday going? The weather has had the humidity drained off, thankfully. Yesterday was rainy, but it opened up into a lovely Saturday afternoon & evening. Sunny right now. Somewhere around 18°C, no visible sign of a breeze. I have dome quarterly meeting this evening for the Non-Profit whose board I sit on. That should be about 60-90 minutes of my evening planned out.

The fundraiser for Erik was a success, we raised the $25,000.00 goal in roughly 72 hours or so. As the goal was met, and now exceeded, I plan to close it down come Monday morning. I have toggled my intent to stop accepting donations, and will finalize those plans tomorrow. With the expectation that all funds go into a trust for Erik to be used for his grief/trauma counseling needs until he reaches eighteen. I have faith that it will be enough to last the full eight or so years. A massive thank you to everyone whom donated, and made this fundraiser possible.

Hell of a week.

Let us just leave it at that then huh? Whoo boy what a freight train of a week. If I didn’t have the fundraiser to sink all of my available time & energy into, I think I would have sat and wallowed in my sorrow. It was good to be busy. A net positive for a horrible situation. I truly believe we have come together to do something great for Erik. And that is all I ever wanted it to be. One sliver of hope in a terrible time in his life.

**BREAK**

In other news, it’s Saturday. This last week has been hot as balls, and humid AF. Doing any work outside has resulted in dripping sweat and sticky clothes. I do not envy outdoor workers, nor miss my time as one of them. This rain is unexpected. My laen is lush and green still which is weird. My yearly trend of yellow brown, tan crispy grass hasn’t turned up yet. Still have to cut the grass once a week. Better than the twice per week it can be in the spring & fall though. Lots of continuous weeding to do in all of the beds too. Be nice if the weeds would take a mid summer hiatus. But no. Still springing up and keeping my hands filthy, and my back sore.

Swimming lessons have begun anew. Kids are upset that they have to swim the whole 30 minutes because the classes are so small. Big feelings from my two. Lots of hot & humidity fueled attitude too. Could do without that. I think much of it stems from being hangry. Kids aren’t fond of eating a breakfast. And then get over tired from swimming, and refuse to believe that their moods are affected by the lack of food and energy in their system. Such fun!

The two funerals are next weekend. Going to be a tough few days leading into the civic holiday. Ciao Bella!

The release of at least one funeral announcement.

** Funeral Announcement for Michelle Bader **

Family and friends are respectfully invited to attend the funeral service for Michelle Bader, which will be held at Skwarchuk Funeral Home at 30 Simcoe Road, Bradford, ON on Friday, August 4th, beginning at 2:00 pm.

** Memory Book Contributions **

I am assembling a memory book to commemorate Michelle Bader’s life and to provide heartfelt messages and memories to her family. A printed copy will be presented to Michelle’s parents at her funeral. Submissions can be made using this link (Google Form):

https://forms.gle/vDaYGVJBQbzcCEFF6

https://gofund.me/2be8e91c

***UPDATE****

** Funeral Announcement for Heidi Bader-Shaw, on behalf of Jarrod Shaw **

Family and friends are respectfully invited to attend the funeral service for Heidi Bader-Shaw which will be held at Low & Low Funeral Home, Uxbridge Chapel, at 23 Main Street South, Uxbridge, ON on Saturday, August 5th. Visitation will be at 1:00 pm, and a service will be held from 2:00 – 3:00 pm. Children are welcome to attend.

Pictured above, Michelle Bader, and Heidi Bader-Shaw.

The Mantra I have to remember…

It’s not about me. Don’t make it about “you”. I can see it clear as day how tantalizing it would be to put yourself at the centre of it all. The attention, engagement, messages, tweets, DM’s, phone calls, and the dopamine hits from watching the counter climb. It’s all very tiring and yet deeply intoxicating. But it’s not about me. Not about me. Stay out of it. Don’t heed the siren’s call. Avoid the rocks yo!

I’ve been quoted in more news articles in the last 48 hours, than the previous 43 years and several months combined. Not about you bro. Stay on track, keep the campaign running but stay in the background. Do the leg work. Build on the ground swell, for Erik. For the scared nine year old whose whole world has just been tipped on its end. Make it count, for Erik.

I have learned a few things, some terrific, others less so, while running this campaign. The best thing I’ve learned is how passionate our community is in providing long term mental health care for a child in need of a helping hand. People are generous, kind and supportive. Love that. Then there are the hangers-on, seeking to build their own personal brand, or networking connections, even a pay-cheque for their efforts to glom on to something that looks as though it could do numbers. That I wasn’t prepared for, but should have been. A tad naive in that respect, that my dear friend, is entirely on me.

There are other things I’ve learned, and am still learning, so I’ll leave it at that for now. Perhaps after the campaign is done, and I get the accumulated funds off to Erik so that he may continue on his long journey to healing I’ll have more to say about my experience. But, it’s not about me. This blog is, mainly just me talking out loud, but you get what I mean.

When we put this campaign together, my wife and I discussed it at length thinking what was the best possible thing we could do, when what you really want to do is not possible. We can’t raise the dead. Sad as that may be. But with a smidge of objectivity, borne out of a distance from the tragedy, and my wife’s working knowledge of therapy costs from working with at risk youth, we felt a longer term approach was the path to take. It ain’t much, but it’s honest work. I’d hope that someone would do the same for my family.

I spoke with various people to ascertain if I was stepping on toes, or competing against wishes or what have you. Once I was given their blessings I just got the ball rolling. Really the bulk of this gift of longer term mental health & wellness comes from you all. I don’t have $12,500.00 to give, so this is a massive community win. I am so glad for the support. My heart swells thinking about what an opportunity this is for Erik in his time of need. Thank you all so much.

https://gofund.me/2be8e91c