Aging with Crohn’s Disease…

Over the last month or so the new normal is feeling fine, followed by an emergency broadcast to use the bathroom which has roughly 30-60 seconds to comply before calamity. No other sense of impending doom is given. No thirty minutes out tummy rumbles. No bloat. Just all’s fine, then Go!, go, go, go, ahhhhhh shucks.

So that’s a fairly perfect snap shot of my life over the last thirty days. Living with intestinal issues has been challenging to say the least. I’m nothing if not adaptable to the realities of my new normal, as it alters and fluctuates every so often, year in and year out. I’m far better off now than in my teen years, or even my early twenties. So don’t shed any tears for me. I am accustomed to taking very seriously the realities of my particular brand of illness. It cares not one whit for how things used to be, or any markers or indicators I used to use to gauge my internal gut health. Not knowing your bodies signals right away is weird. I have to live through it enough to be able to piece the new way together. Do I get cause and effect, coincidence, correlation jumbled? Yeah – yes I do. But if this new way stay stable long enough you can narrow the signals down to what is random noise, and what are the new big sign posts I should pay very close attention too.

Acid reflux and heartburn aren’t new, but the increased frequency with which I deal with those is new to me. Drinking pint glass after pint glass of water has helped out. Eating less dairy per day is usually a smart play. Finding the right balance of veggies and fruit that doesn’t make me feel as though I have swallowed broken glass. Needs to be enough to keep me healthy, but not enough to trigger my ulcerated bowel.

Anyone with intestinal issues has probably internalized a certain (***TMI WARNING***) personalized colour chart, a sense for the sickly sweet smells our bodies produce, and a Richter scale for intestinal rumbling that we use to chart out and/all travel plans, or how far from a restroom we’re willing to be and for how long. In my youth I had to plan out my routes to events or places by what bathrooms were on the way, and whether or not I had to buy stuff to access those bathrooms, and if the owners / operators were ok with a running in and blowing ass all over the insides of their toilet stalls. I never left a place looking any worse than I found it, but I can’t say the same thing for anyone else.

So how is your Lazy Sunday going? The weather has had the humidity drained off, thankfully. Yesterday was rainy, but it opened up into a lovely Saturday afternoon & evening. Sunny right now. Somewhere around 18°C, no visible sign of a breeze. I have dome quarterly meeting this evening for the Non-Profit whose board I sit on. That should be about 60-90 minutes of my evening planned out.

The fundraiser for Erik was a success, we raised the $25,000.00 goal in roughly 72 hours or so. As the goal was met, and now exceeded, I plan to close it down come Monday morning. I have toggled my intent to stop accepting donations, and will finalize those plans tomorrow. With the expectation that all funds go into a trust for Erik to be used for his grief/trauma counseling needs until he reaches eighteen. I have faith that it will be enough to last the full eight or so years. A massive thank you to everyone whom donated, and made this fundraiser possible.

Are you an over the knees or around the ankles kind of a person…

Well now, that’s a deeply circumstantial – and awfully personal question. And the answer is, it depends. Am I home, away, early in the am, very late at night, inebriated, hung over, under gastrointestinal distress? Everything factors in to the answer. No way would I let fabric touch a public men’s room floor. Nu-uh! No way. Never. But if fighting for my life on the seat, may strip down entirely (when at home). Who needs clothes on when it feels as though your entire life is draining into the porcelain. Unwanted firehose spray back is a powerful deterrent. Like I said, that is deeply personal, and I thank you for respecting my privacy at this time.

Tuesday – forgot it was recycling day today. Saw the neighbours gear out front and twigged to it, luckily before the green trucks came through. I didn’t even register it was going to be Tuesday while prepping for gymnastics last night. Usually I pull the bins out of the guard box on Sunday or Monday to load them up, and be ready to spring into action anytime after 7:00am should I hear the grumble of the green trucks on our street. But I completely blanked on it. How odd. I have been fairly busy straight through since January 2nd this year, which is – really, really rare for me. No major breaks as of yet. Oh I know they’re coming. Highly unlikely I’ll be this busy all year long.

I had to put the Urn build on hold due to the cold, and volume of work I had on tap. Glue doesn’t set properly in deeply cold weather. And as mentioned before, no major heat source out there right now. I have it partially insulated, but I have a long way to go before the temperature would stabilize enough to work comfortably between December and Mid March. The base is done, the exterior chamber is done. I have the pieces for the interior cut and ready to glue in place. I have the top of the cover ready, and can build the tray and cover fairly quickly. Then it’ll just be a matter of scraping, sanding and then a highly polished finish to make it shine! I’m ok if they decide to not want it. I’ll put it in my office closet up out of the way, and can hold on to it for myself.

Started a Richard Morgan book I’ve had in my possession since 2007. I remember how much I loved the Altered Carbon book series. This is in that universe, but not directly related. I have a fantasy novel he wrote from 2008 in my to read pile too. I usually tend to buy more books than I can read in a year, so I’m happy to oblige historical me, by actually getting around to reading books that have sat on a shelf for ten-fifteen years or so. I know I have a Mo Hayder book I haven’t read yet too. I’m usually not into horror / murder books, but she writes great, creepy, gripping stuff. The current Richard Morgan book I’m reading is “Black Man”. Longest book I’ve read in quite some years. Over sized paper back with tiny type. So I feel like it would be a much longer trade paperback than the page count it currently has. I’m two fifths of the way in. Lots of action, lots of science fictiony hand waving tech jabber, and lots of mystery/suspense. For some reason I thought I had read this when I kept seeing it on the shelf, but it’s not ringing any bells no matter how far I get into it. Which is great. I hate when I forget I’ve read something before. Invest all that time to read it, and then PING! oh! I know how this ends, oh I’ve read this before! Damn it! On to the next book.

I haven’t put any time into sculpting yet this year. I know I will at some point. Just not right this minute. I haven’t put much thought into finishing up the illustrations for my childrens book either, come to think of it. I really should get that stuff squared away. Not that my writing career will ever go much beyond this space, and self publishing. Sometimes I just gotta get a story out of my head. Doesn’t have to mean anything more than that. I share it, if anyone besides me reads it, or enjoys it, all the better. Hope I made you smile, or wince, or chuckle, or cringe. Better than straight up apathy. You know what I think? I think that many of you out there have a story you want to tell. I think you should put pen to paper and get it out. Just let it fall out of you. Don’t worry about style, voice, the hook, or any of that. That’s for the editing stage. Right now, go jot down some points, and just plop it out on the page. The good, the bad & and the ugly. You’ll feel better when you do. Way easier to tweak and refine what you have in your hands than wish you wrote the perfect thing in one go. But what do I know. I’m just some dude talking on the internet to the three folks that read me off and on. Hey guys! Hope you are well. Ciao Bella!