Feeling creatively blah…

Haven’t done much of anything creative for myself in a while. I have been trying to game out some story plots and losing track mid way through. Haven’t painted or sculpted anything in several weeks either. Completed a few paid projects but beyond that haven’t felt compelled to do much of anything really.

I did start my corn hole game build, and picked up my allotment of cedar for a front porch bin for garbage can, green bin and recycling boxes. Damn raccoons get into everything. Still in the early planning stages for that particular house hold item. I made a step stool several weeks ago, which was fun and easy. But haven’t felt like doing anything with all of this pause time.

Mind you our house has two kids at home, whom are exhausting. Keeping two kids five and under occupied, entertained, exercised, and educated is proving to be a monumental task. Plus my wife is working from home, and I had paid work going on daily up until recently. Fatigue is a mother fucker, believe you me.

On the upside I have done a fair bit of reading. I read the third installment of John Scalzi’s The Last Emperox (Great, by the way). Marcus Heitz’s fifth Dwarf book in his series (a very pleasant read), a book about the New Horizons mission to flyby Pluto in 2015 (just incredible!). I have started a book about the Mars rover Curiosity, but I’m only a handful of pages in, so I can’t say much about it one way or another.

On a side note I managed to get my Brad nailer and pin nailer up and running, so I don’t have to use so many wood screws on everything anymore. That was exciting. Cleaned up the garage so that I can actually move around in there. Cleaned out the rain gutters after a huge downpour. Poor timing on my part, but in my defense when I put up our Christmas lights they were fairly clear, so I didn’t think they would be clogged. Good thing we didn’t flood because of it. Got up there and pulled several pounds of decayed leaves out of the downspouts, so checked that off the list.

Would like to paint the downstairs hall, and wash/sand/stain the back deck this summer. That is unless some events come back online with heightened pandemic health protocols in place, and I can get back to producing event audit marketing reports, instore signage and sales catalogs and sell sheets and other branding materials again.

That heatwave was rather unpleasant, but it’s been such a crazy year, the fact the weather is wonky doesn’t surprise me much at this point.

A toddler becoming a three-nager is a very real and frightening thing. She’s lovely, but good lord. Dealing with attitude from a five year old and a nearly three year old, is something else. The struggle is real y’all. Hod love’em, but they test my patience.

The USA is burning. Racism is alive and booming all around the world. That sucks, a lot. Don’t be a cunt to other humans. Work to bring around the change you want to see. Donate, volunteer, or take a moment of self reflection and introspection. Help those less fortunate than yourselves.

It’s chaos, be kind – Michelle Macnamara

You know, I’ve been down into

The deepest depths of the ocean on a year long solo mission, I’ve been left stranded on a rocky out cropping of an island somewhere in the south Pacific for what I later learned was nearly three years, and now I work hauling minerals and ore for The Company out in deep space on an immense refinery freighter. Do you know what these three things all have in common? Isolation, misery and a total lack of any kind of quality amenities. Put those locations together with a vivid and increasing sense of impending doom and you’ve got yourself a recipe for disaster. You know it’s kind of funny how we always assumed that our salvation would come in the form of a generational colony starship that could shuttle humanity off deep into the cosmos. But, as a species, humans we aren’t very well equipped to deal with the dread and despair associated with the isolation that accompanies deep space exploration, and trans generational travel. It takes a certain type of psychopathy to be able to deal with those particular stressors found during extreme cases of isolation. I for one, am just the right kind of crazy to pursue those types of careers where these issues are present. I’m as close to a recluse as you can get. Like a full on level ninety nine introvert. Nothing makes me happier than to spend time alone working on all sorts of shit. I also have little concern over tight spaces, like those found in the void between a star ships double hulls. To perform such pleasures required of me during regular maintenance I get to play BDSM dress up in various harnesses and tight fitting gear over top of my jumpsuit and poke around in these labyrinthine crawl spaces that criss cross these massive vessels in a lattice work of dead ends, bolt holes and conduits full of cabling and pipes. Deep, dark and for the most part endured in entire radio silence. The captain of my last vessel said that when his ship runs out of coolant they will ask me for a blood transfusion so that my life blood could keep the transport running ice cold. My nick name is Zero K, the K is for Kelvin. People who don’t like me much call me absolute zero, but eh, fuck them. I enjoy hard labour away from crowds of people. I’m the guy who volunteers for shite details so I can work off peak hours, and all alone. Or at least with minimal supervision. I have one friend. An angry, short & hirsute fella who doesn’t know how to speak in anything other than a yell, or monotone. We usually sit in silence and drink until one of us slinks off to bed without saying good bye or goodnight. A lot of guttural grunts and groans pass between us as a kind of idiosyncratic language. He’s great. Likes the same beer, works similar shifts doing the same work as I do. We have matching burns and scars. We’d have made an excellent couple if either of us were gay. Well, you know we would have if he hadn’t of gotten killed during an ammonia leak from a pierced pipe. What do you know, done in by a random sharp edge on our industrial strength PPE. You see, technically we’re considered to be inside the ship, even if we are actually between the inner and outer hull plates where all the majestic inner workings of the ship are contained. That means we don’t qualify for the over the head fully encased respirators with individual environmental controls. We just get an over the mouth and nose mask with change out pads for dust, debris and moderate airborne contaminants. He stood no chance against that leak. It blew aerosolized ammonia right over his face at point blank range. Hell, at 8 PPM, that shit kills, let alone a full jet stream dumped over the back of your head. After that I filed down every hook, link and carabiner on my tattered, dusty red jumpsuit. No point in repeating the sins of my only friend. Crawling in there after him and having to drag his cold lifeless body through the darkest reaches of the ship was not something I ever wish to do again. As it would happen, I would never have to. As all of them, the whole crew that is, all seven hundred of them just up and died while I was doing maintenance on the main bus panel wiring underneath the bridge several months ago. A fucking dick of a job too. The sort of job that requires about sixteen hours of crawling, bending and twisting to contort my body through the minimum sized access ports that are located around a massive water bladder just to get to the appropriate junction, then only needs forty minutes of upkeep performed on it. Like, what a piece of shit. Then you guessed it, another sixteen hours to extricate myself. All told – with food breaks, sleep and an abominable amount of crawling, that job was fifty two hours on. I went in and everything was hunky dory, I come out to a ghost ship with nothing but the dead bodies of the crew laying around. Mysteriously, with no known reason that was readily apparent. And just like that, I find myself in isolation again. For what it’s worth, our course through the stars was predetermined, and we will come home after our five year mission is completed. I have enough resources for seven hundred people over a five year term, so I shall not starve, nor will I be dehydrated. I just have to remain sane, and do my scheduled tasks, and pray. In the sage words of the twentieth century philosopher Jean-Luc Picard “You can do everything right and still lose. This is not a personal failing, but a fact of life.” I read that quote every day at the start and end of each shift. I have it etched into the bulkhead over my bunk in my crew quarters. Really makes you think – huh.

The loud hum of the air vent is echoing deep in my ears as I float, eyes closed, with the gale force breeze blowing into my face. The ship as a whole gets very quiet these days, and the loudness of the moving air makes me forget the ominous lack of activity aboard. I can almost imagine the sound of passing cars, birds or the far off indistinct muffle of an overhead conversation. When you spend years alone you learn to developed methods of finding inner peace and forgetting the banal repetition of your average day. My current trick is to crank up the lights, close my eyes tightly, and bury my face in the central air vent in the commissary. It moves the most air, and offers me enough room to just float in place while my imagination runs wild. Auditory hallucinations abound. Sometimes I can even feel the sensation of my communicator buzzing or hear an alarm sound. As I while away my time, face buried in the vent, the ship continues to perform the vast majority of it’s automated tasks. I keep to my work schedule, and eat the same things on the same decks as before. I know all too well the dangers of getting trapped somewhere strange by myself. That is not something I wish to repeat. I made a tough decision that weekend, and I still have the scars and emotional baggage associated with my extrication. Crawling three kilometers through the bowels of the ship to reattach my left arm at the elbow in the med-bay medical pods is not something I will likely ever forget. The trail of blood was gone by the time I felt well enough to leave that pristine white pod. The ai infused scrubbers had removed all trace of my nightmare. I kept the scar so that I know it really happened and I didn’t just dream it up. I do that a lot these days. I leave notes and etchings and drawings so that I remember having been there, and not run around the whole ship thinking I’m not actually here alone. When I am. Entirely alone. Isolated. With another three years and eight months left to go. In the cool cacophonous hum of the air vent I almost feel normal.

 

******

And for something different in these odd times, you can listen to me narrate this short story.

“Babe, can you come upstairs, Sarah’s been sick again…

And it’s all over her bed sheets, her carpet, down the hall and seeping into the heating vents by the toilet.” With fuzzy, light blinded eyes I catch a glimpse of my wife walking back up the stairs from the landing. Pulling my sheets back, I feel the bracing chill of the late night air in my room. “God damn!” I blurt out as I step down, bare footed on the cold vinyl flooring, it feels like I’m standing on a sheet of ice. Lumbering half awake, I come to the stairs. My legs not yet functioning, my ankles creaking along with the old steps. Rubbing my hands on my thighs, feeling the fleece of my pants against my palms. Flexing my fingers, I mount the last few steps. Coming to the main floor I’m hit with the stench of it all. From the bathroom I can hear my daughter weeping, my wife a gentle murmur in the distance. I can hear snippets of their conversations…”No, no baby, you’re not in trouble, it’s ok, don’t cry, I know, I know.” There is a flurry of activity as my wife strips off the soiled pajamas and lays down towels to soak up some of the mess. I turn down the hallway, and grab a mop and bucket. I squeeze out some lemon scented soap and I can feel the steam from the hot water. The vapour is condensing on the cold window over the sink, rivulets of water pooling at the base of the sill. I pull down some paper towels, and grab an old plastic bag from a drawer. It’s sticky, and has an old crumpled up receipt in it, something that was beige had been in this bag.

“You two go curl up in bed, I’ve got you some water to drink, and I’ll strip off your bed after I wash the floors.” It’s the same script as before. We’ve done it so many times, I can move through the motions without having to think about it anymore. Afterwards I’ll fall asleep on the floor of my daughter’s room. I crash about, like a drunk searching for a full bottle among all of the empties strewn about the house. The smell is what gets me, never the sight of it. How can so much come out of such a small child. Looks the same, regardless of the end it originated.

After a time, I notice there is a sliver of light in the master bedroom, standing in the hall I can hear softly spoken words, lilting in a sing song fashion. Sarah is falling asleep in my wife’s tired arms. They are sharing a pillow as they cuddle. I can see sweat on my daughters brow. “This fever just won’t fucking break”. I say it aloud, but quietly, to myself. I need to grab more pain meds from the drugstore tomorrow. Turning from the doorway, I shut off the lights, and I collapse onto a pile of stuffed animals. Everything goes black.

I can hear the clock, the seconds are ticking over as…

I sit here, in the stuffy, cramped, poorly lit waiting room that stinks of passed gas and desperation. The drab walls are covered in old posters, they look as though they came with the building. Torn, creased posters of a time gone by. Taped up and taped over with each successive room owner. Between coughs, burps and the occasional gasp of pain, all you can really hear is the soft murmur of far off voices, hidden down the long hall, behind a beaten up partition of dubious make. The neon lights are buzzing, the quality of air in here is making me uncomfortable. Why are there no windows? Why are there no vents? Why did I wear such a heavy jacket, there’s never anywhere to hang it, and I’m sweating through my shirt. I’m increasingly aware of the unpleasant aroma emanating from my work shoes. Blessed with foul smelling feet, halitosis and psoriasis. Even though everyone here is lost in their own pain or suffering, I feel everyone’s eyes upon me, flickering back an forth, from flat out stares to furtive glances. I fucking hate it here.

A printer chimes to life, and a warm slip of paper pops out, only the flop to the floor. The receptionist is no where to be seen. A pile of papers has begun to form. I fucking hate it here. “What was that?” The elderly lady beside me who reeks of death quietly asks, her hot sickly breath filling my face, eeking it’s way into my lungs. I feel as though I can taste her. “Hmmm. What? Nothing. Nothing.” I squirm in my soft pleather seat, hating the soreness in my back and the ache between my shoulder blades. My hair has started to mat to my head in the places that static hasn’t made it stand up on end. The heat in here is oppressive. The printer comes alive – again, more papers flit to the floor. We are all unattended.

Living with Crohn’s. [warning: GRAPHIC CONTENT]

This has been an entry I have meant to write since I purchased this blog space on WordPress, but I haven’t really managed to put what I want to say down in words as of yet. I came by Crohn’s Disease honestly (not sure there are other methods other than sudden trauma, sickness or stress, and in my case genetics). So why now, well I was fully diagnosed in 2005 after I graduated from University (I had all ready graduated from a 1 year college program at this point with some interesting developments in my illness & symptoms). Up until now, that had been the last year of a major flare up and a follow up colonoscopy. I haven’t had a flare up, but since it has been 8 years, and a new gastro Dr, and some changing symptoms we felt it best to have a poke round.

Part of why I am writing is that as a thirteen year old tween, I felt pretty different, and uncomfortable, and had some unpleasant bouts of depression, and low-ish self esteem. But Crohn’s isn’t a reason to give up on everything you enjoyed before being affected by it. Mind you, while I had a nasty and confusing case, I haven’t needed a Brookes ileostomy, or a colostomy bag (so I count myself as lucky). I do have a very ulcerated bowel, a mess of a Duodenum and ileum. The next step up in prescription medication are the Biologics, and that’s about $25,000 a year. So yes even with the pain, and blood and threat of a stress induced flare up I count myself lucky.

You can go to school, play sports (I wrestled and played soccer in between flare-ups in high school, and played Rugby and rowed a little bit in university) I also sang, danced and played trombone from grades school through until university. All in all, over my high school career I didn’t miss that much time to illness, although my roughest patch from what I recall was about 1-2 months off school. I had good enough grades prior to, and was doing homework issued to me by some understanding teachers, that I was able to pass on to the next school year uninterrupted. Yes there were a lot of sucky, sad, depressing weeks and months interspersed in there, but it gets better with age, and as you build character and gain a better perspective on what really is important. As shitty as I felt, I didn’t have cancer, and more likely than not this wasn’t going to outright kill me. Even when it felt like it was. So chin up. Find a hobby you can do sick or healthy. Drawing, painting, singing, playing a small to mid size instrument. These things will keep you in a happy place when everything else goes to pot.

I was about 13 years old when I had my first bout. I had been really ill over the Christmas Holidays (as was the usual case for me when vast quantities of food was available) I think I had a crazy flu, that led to some nasty night sweats and hallucinated dreams, and general unpleasantness. A few months later while on a school graduation trip (Grade 8 Wonderland trip). I ate some questionable items from a snack bar and then spent about 5 hours in the mountain toilet feeling like a balloon was inflating and then constricting in my bowels. By far not the worst bout I’d had, but for a first introduction it was enough. Then the big symptoms sort of went away, and I spent a great amount of time feeling bloated and uncomfortable after every time I ate (anything, could be fruits, vegetables, meat, poultry, sugar, starch, water, rice etc etc…) all of it left me sore and in some sort of gastric distress. By the time I was sixteen, and in high school, I was going to the toilet about 16 – 20 times a day (Gas, mucous, and lots of abdominal pain). I had a few odd moments of throwing up in my principals car one time when he was the only one available to drive me to my Dr’s office. (Did I mention that at that time I lived in rural Ontario (Erin. Pronounced Air-in to those who weren’t born there, and Ear-in to those who were). Any way, I had a fair few occasions where I had to rush to one Doctor or another for a shot of Demoral or whatever in my hip/butt.

I was put on Diecetel, and had a stash of some other prescription that dissolved on the tongue and numbed everything from my mouth to my anus. (Levsin I believe) or some such like that. I had a few colonoscopy’s and gastro-oscopy’s (4-6) of them between 15 -18 years of age, and they all turned up inconclusive. Seems my body does a good job at camouflaging any internal damage. Later I would also find out that the effects of Crohn’s on your innards is very similar to that of Celiac Disease. Although with drastically different methods of control and containment.

There is about 20 years of stuff I can tell you. Gory details, and graphic explanations of things that happen to your body. Take vitamins early on, and although you may vomit an awful lot, protect your teeth with as much vim and vigor as you can muster. Hair grows back, and looks a whole lot nicer after a lengthy flare up, but your teeth & bones not so much. In between flare ups you should really try to maintain a work out regimen. Stay positive, and stay healthy.

Anyway, with a scope to under go tomorrow, I just thought I would take some time and put some thoughts down on paper, such as it is. I’ll have more to say on this at a later date.

Cheers! -M